80 %
£20,036
raised of £25,000 target
by 59 supporters
Donate
Laya Zenonos avatar
Laya Zenonos

Give Laya Freedom & Independence!

Fundraising for The Turbo Trust

80 %
£20,036
raised of £25,000 target
by 59 supporters
Donate

The Turbo Trust

We help people with disabilities to buy the best powerchairs available.

Charity Registration No. 1116374

Story

             

Thanks for taking the time to visit Laya's JustGiving page.

 

Can you help Laya?

 

Our precious daughter Laya was diagnosed with Spinal Muscular Atrophy Type 1 (SMA 1) when she was just 8 months old. Laya is now nearly 5. SMA1 is a life limiting condition without a cure. Laya cannot walk, crawl or even sit by herself. She has very poor head control and she has extremely weak muscles. For instance a small apple is too heavy for her to hold. Although profoundly disabled, Laya’s brain is completely unaffected by her condition, she is very bright, loves to sing, read, tell stories and chat!


A year ago, her current wheelchair, Wizzy Bug, gave Laya her first taste of independence. For the first time she didn’t need to be pushed or carried, she was able to move in a direction that she chose, where and when she wanted to.  We will never forget her smile on that day, it’s a memory we will always treasure. She has now outgrown Wizzy.


Laya is very special as there are only a small handful of children around the world with SMA1 who have survived passed the age of two.  We really believe that with the right support (and a lot of love) Laya will continue to thrive and love life.  This is why we desperately want to raise the money to buy her a Snap Dragon wheelchair, it will completely open up her world and enable her to keep her independence. You only need to watch Laya's video to realise how much she wants and needs this wheelchair (link is in her gallery)


With your help we might be able to give Laya what she needs!

Please check out this link http://m.bbc.co.uk/news/magazine-28044341

If you can help Laya and also spread the word we would be very gratefu!

Antony & Lucia (dad & mum)

 

Please note:   By donating through JustGiving, your donation will go to The Turbo Trust who will use the funds to provide Laya with a Snap Dragon.  If you are a tax payer they will benefit from gift aid.  If we manage to exceed our target then any extra funds raised will rest with The Turbo Trust who will help to provide other children with needs similar to Laya's with powered mobility chairs too.  If however you ONLY want your donation to go to Laya  please visit Laya's website    https://www.indiegogo.com/projects/helping-laya/x/9801799  OR   www.helpinglaya.org


Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

 

Photos

6
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Supporters

59