Story
Hi all,
Thank you for taking the time to view my fundraising page for Arianna.
During the 1st week of July this year I intend to cycle the entire length of the UK from Land's End to John O'Groats to raise money for Arianna's cancer treatment (more on the little superstar in a moment 🙂).
The route is around 1,000 miles. Those that know me know I'm often referred to by my beloved Wife as the 'Bike Wanker'!
To help entice you to get behind this and make this the craziest thing I've ever done I want to make this a real challenge to earn your kind donation...
Google 'how long is a decent time to do Land's End to John O'Groats' and you'll be told by normal people this endeavour would take anywhere between 10-14 days!
Arianna is the lovely Niece of a good friend of mine. I'm joining many others helping to raise money for her treatment by committing to do this in 5 days 👊.
Read below to understand why...
Arianna's Story
Arianna is a beautiful, funny and kind-hearted 5-year-old, who loves dressing up in princess and superhero costumes and playing with her two younger sisters, Mya (3) and Zara (1). Arianna will become a big sister for the third time when her new baby sister joins the family in March 2022.
Arianna is the kindest little girl; she is so thoughtful and considerate of others. She is the one who will always stop and help an injured friend or cuddle a crying sister. She has a heart of gold.
In November 2021 Arianna was diagnosed with high-risk neuroblastoma, a rare and aggressive childhood cancer that has a 40-50% chance of long-term survival at diagnosis.
Arianna's parents are currently fundraising for potentially lifesaving treatment, either to get their daughter into remission or to try and keep the cancer away if her frontline treatment does go to plan. This could cost hundreds of thousands of pounds.
In July 2021 Arianna started to experience slight upper back pain. At the time it was put down to having a new bed. The pain disappeared for a short time but in mid-November Arianna's symptoms worsened and the pain moved to her lower back.
After going back and forth to the GP and A&E a number of times; including 3 times in just one day, on the 19th of November, the family were devastated when doctors discovered a tumour on her kidney.
On the 26th of November, Arianna was officially diagnosed with stage 4, high-risk neuroblastoma. Her parents were told the shocking news that her cancer had spread to multiple bones and her bone marrow.
Treatment so far
Arianna is currently undergoing an aggressive treatment plan at Great Ormond Street hospital where her treatment is likely to last between 18-36 months.
Arianna has so far had 6 rounds of her induction chemotherapy, with side effects including extreme nausea, lack of appetite and hair loss. Although in the early stages of treatment, Arianna has already endured so much including biopsies, MRI scans, MIBG scan which includes nuclear medicine, general anaesthetic and blood transfusions.
Arianna's treatment plan is extensive and once she has completed this stage of treatment she will go on to endure chemotherapy, surgery, high dose chemotherapy, radiotherapy and immunotherapy.
Arianna has a tough road ahead. Neuroblastoma is rare and the survival rate is only 50%. Once Arianna beats this cancer there is a 60% chance that it will return. Relapses tend to be more aggressive with the survival rate dropping to 5%. This is why we are desperate to raise the funds needed to help Arianna.
These funds will be used to access treatment abroad once Arianna has completed her treatment in the UK. Unfortunately not all treatments are covered by the NHS.
The treatment we are focused on is the Bivalent vaccine in New York. This vaccine reduces the chance of relapse. We want to give Arianna as big a chance as possible and are raising these funds to be in a position to take her wherever we need to go to in order to receive the best possible treatment.
Please consider donating to my page and thank you anyone who is able to help in any small way. I'm really grateful.
Also, keep up with Arianna's progress here - https://www.facebook.com/arianntherealwonderwoman
Like and share the page to spread the word so that others can get behind her too.
Thank you
Alan (Bike Wanker!)
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