Thanks for taking the time to visit my JustGiving page.
We are raising money for young kids that suffer from Duchenne Muscular Dystrophy which sadly is 100% fatal.
This condition urgently needs funds to be directed into global research for treatments to try and slow or halt the muscle deterioration.
Affected boys lose their mobility aged just 10 - 12 years and their young lives are taken in their early 20's, usually due to heart and respiratory failure.
We are asking for donations and sponsors for a number of forth coming events :
19 April 2015 - Zip World - The Return by Claire Shaw. We head back to Snowdonia, North Wales with another team of volunteers willing to be launched head first down a zip wire - up to 119 mph - the longest, fastest zip wire in the world. Spaces available - £25 registration/entry fee (usually £60 per person entry) with a minimum sponsorship of £200 to be raised.
16 May 2015 - Charity Ball, Auction and 80's Party. Willerby Manor Hotel, near Hull. 4 course dinner, Black Tie. This event is run by a friend who is raising money for Action Duchenne. £30 per ticket or tables can be bought (to seat either 8,10,12) - tickets available but for long !
October 2015 - Swimming with sharks, no cage ! Cheshire. Teams of 6 - currently recruiting !!! £30 per person to secure your place (usually entry fee waived) with £370 minimum sponsorship.
Summer 2015 - 25 x 4 ball Golf Tournament date TBC by Adele Cheetham
February 2016 - Sky Diving. £29 registration and £399 minimum sponsorship (tbc) currently recruiting !!!
28 February 2015 - Nottingham - volunteers take to the skies and throw themselves out of a plane at 10,000 feet. #MakeTodayCount
Steve Jackson The Trek – Mount Meru and Mount Kilimanjaro - thanks Steve and well done for completing this safely !
Over 40 Super Heroes Velocity Zip Wire - 100 mph from Snowdonia, head first on a wire - 5 October 2014 - fabulous weekend and thanks to all volunteers for braving their fears!
Ex Hull City Tigers v Ashley United 14 September 2014 - Pay to play event. Ex Hull City Legends scraped a win (!)
Half Marathon by Ian Chance - completed thank you Ian.
Jo Markham - Super Hero Jo Facing her Fear - Sponsored Swim
Hulls Got Talent by Leroy Vickers. Evening of local performers lined up. Boom Bar, Hull. £5 per ticket.
THANK YOU SO MUCH TO THOSE THAT HAVE SUPPORTED BY VOLUNTEERING OR DONATING .... I AM TRULY ASTOUNDED.
Thank you for any support you are able to offer in helping to fund the research into this devastating and cruel condition.
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