Your friends are fundraising. Don't miss out, opt in.

526 %
£26,309
raised of £5,000 target
by 385 supporters
Donate
Lesley Wegg avatar
Lesley Wegg

Action for Ashley Wegg

raising money for research to find a treatment for Muscular Dystrophy UK because we need a cure to save our Sons

526 %
£26,309
raised of £5,000 target
by 385 supporters
Donate

Muscular Dystrophy UK

We fund research into muscle-wasting to improve the lives of everyone affected.

Charity Registration No. 205395 (England and Wales) - SC039445 (Scotland)

Story

Thanks for taking the time to visit my JustGiving page.

We are raising money for young kids that suffer from Duchenne Muscular Dystrophy which sadly is 100% fatal.

This condition urgently needs funds to be directed into global research for treatments to try and slow or halt the muscle deterioration.  

Affected boys lose their mobility aged just 10 - 12 years and their young lives are taken in their early 20's, usually due to heart and respiratory failure.

We are asking for donations and sponsors for a number of forth coming events :

.

19 April 2015 - Zip World - The Return by Claire Shaw. We head back to Snowdonia, North Wales with another team of volunteers willing to be launched head first down a zip wire - up to 119 mph - the longest, fastest zip wire in the world. Spaces available - £25 registration/entry fee (usually £60 per person entry) with a minimum sponsorship of £200 to be raised.

16 May 2015  - Charity Ball, Auction and 80's Party. Willerby Manor Hotel, near Hull. 4 course dinner, Black Tie. This event is run by a friend who is raising money for Action Duchenne. £30 per ticket or tables can be bought (to seat either 8,10,12) - tickets available but for long ! 

October 2015 - Swimming with sharks, no cage ! Cheshire. Teams of 6 - currently recruiting !!! £30 per person to secure your place (usually entry fee waived) with £370 minimum sponsorship. 

Summer 2015 - 25 x 4 ball Golf Tournament date TBC by Adele Cheetham 

February 2016 - Sky Diving. £29 registration and £399 minimum sponsorship (tbc) currently recruiting !!!


COMPLETED EVENTS

28 February 2015 - Nottingham - volunteers take to the skies and throw themselves out of a plane at 10,000 feet. #MakeTodayCount

Steve Jackson The Trek – Mount Meru and Mount Kilimanjaro - thanks Steve and well done for completing this safely ! 

Over 40 Super Heroes Velocity Zip Wire - 100 mph from Snowdonia, head first on a wire - 5 October 2014 - fabulous weekend and thanks to all volunteers for braving their fears!

Ex Hull City Tigers v Ashley United 14 September 2014 - Pay to play event. Ex Hull City Legends scraped a win (!)

Half Marathon by Ian Chance - completed thank you Ian.

Jo Markham - Super Hero Jo Facing her Fear - Sponsored Swim

Hulls Got Talent by Leroy Vickers. Evening of local performers lined up. Boom Bar, Hull. £5 per ticket. 

THANK YOU SO MUCH TO THOSE THAT HAVE SUPPORTED BY VOLUNTEERING OR DONATING .... I AM TRULY ASTOUNDED.

Thank you for any support you are able to offer in helping to fund the research into this devastating and cruel condition. 


Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

Supporters

385