I found out at age of 8 I had a very Rare Genetic Disorder call Triple A Sydrome.

I feel that this is a good time to raise money and to let people know and understand the condition that a few of us have of this Rare genetic disorder.

This is a chance for me to raise money for the genetic disorders uk charity, as it is a great cause, which is linked to Jeans for Genes Day.

Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports children affected by a genetic disorder. The monies raised on Jeans for Genes Day provide grants for day-to-day support, equipment, respite and events which bring together affected children and their families.Who we helpThere are between 4,000 and 6,000 diagnosed genetic disorders. It is estimated that one in 25 children is affected by a genetic disorder and therefore 30,000 babies and children are newly diagnosed in the UK each year. Some genetic disorders are apparent at birth while others are diagnosed at different stages throughout childhood, and sometimes into adulthood. Find out more: https://www.jeansforgenesday.org/our-workWhat we doWe help disorder-specific charities and patient groups to deliver inspiring projects and support services for children affected by a genetic disorder in the UK. Find out more: https://www.jeansforgenesday.org/who-we-are