Lisa's Skydive for NCBRS

Lisa Smith is raising money for NCBRS Worldwide Foundation
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Lisa’s Skydive for NCBRS · 25 July 2021

OUR VISION: To create a global community where families, healthcare professionals and researchers work together to ensure that every person diagnosed with Nicolaides-Baraitser Syndrome has every opportunity to reach their full potential. OUR MISSION: The NCBRS Worldwide Foundation is a nonprofit organisation that aims to support and educate families, carers and professionals who work with them. Together we will work to promote awareness and understanding of the syndrome. We will advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments.

Story

Lisa's Skydive for NCBRS

For my birthday this year, I’m doing a skydive at Langar Airfield in Nottingham on Sunday 25th July in honor of the NCBRS Worldwide Foundation. 

My son Harley was diagnosed with NCBRS (Nicolaides-Baraitser Syndrome) in 2008 and was one of the very first few to be diagnosed with it. Over the years we have met many families from around the world thanks to the NCBRS Worldwide Foundation organising and holding conferences. Whether you donate £1 or £5 every little bit will help the Foundation continue its mission supporting NCBRS families like mine globally. You can find out more about the work they do here: www.ncbrs.com

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Thank you for taking the time to visit my JustGiving page. Lisa x

Donation summary

Total
£290.00
Online
£290.00
Offline
£0.00

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