I am in no way a runner, in fact, I hate exercise. I hate being sweaty. I don't like physically pushing myself. I hate the feeling. I started running in October 2014 with the C25K app after being inspired to "Make the most of what I've got" by Skye Hall. I still hate it and haven't managed more than 3km without stopping. But if a 5 year old boy can smile, joke and stay positive while suffering some unimaginable pain and fear, I can get out there and run!
I met Skye on 27th August 2014, a year to the day on from his brain tumour diagnosis. Skye had recently been given his terminal illness care programme and the hydrotherapy which he loved, had stopped. Andrew and Sally, Skye's parents were trying to find a way for him to have hydrotherapy at home. Through a friend of a friend of a friend, we found out about Skye's hot tub wish and that is how I came to meet him.
I will never forget that day for the rest of my life!
Unable to move his arms or legs, Skye was sat in the corner of his sofa watching Mr Tumble and Mr Maker in programmes I've never seen them in before. The volume was turned down, yet Skye managed to direct me to keep pressing the button until the volume was fully up. He told me how he was going to take the seal flips we gave him to his next swimming lesson. Every so often he would cry out in pain because he couldn't stretch his fingers. It was heart-breaking. Yet he was determined to make a loom band to reach the moon to raise money for research into childhood brain tumours.
Two days later Skye passed away.
He did get to go in his hot tub. Sally and Andrew told me how he seemed relaxed and even managed a smile.
Skye didn't die from the brain tumour. He died from the side-effects of the intense therapy he was given. Side-effects which do not appear to be recorded or reported. Research that is chronically underfunded.
This is why I'm running.
Maybe if the side-effects of all the other children had been collated.... Maybe if there was more money to research childhood brain tumours.....
Maybe if I get off my bottom and raise money to help make the maybe a reality, another family will not have to go through the heartache the Hall's have.
100% of the money raised will go towards funding a Post Graduate Phd researcher for 4 years. Just think how many of those maybe's could become reality in 4 years.
Maybe together we could stop another mother facing Christmas without her beloved child.
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Thank you for reading my story and for supporting me and the Hall family.
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