Lisa Derry

Lisa's wobble down Windsor

Fundraising for IiME
£747
raised of £500 target
by 23 supporters
Donations cannot currently be made to this page
Event: Parallel Windsor, on 26 June 2022
IiME

Verified by JustGiving

RCN 1153730
We fund biomedical research into ME to create a strategy for cure/treatment

Story

I'm going to take part in the Parallel Windsor, a Hybrid event to celebrate disability inclusion. My aim is to walk 1km. 

I know what you're thinking, 1km isn't that far for most. But at the moment, I can only really manage 0.5km across a day. Details below. 

Resting and pacing is key to ME/CFS. I'm aiming for 1km but I will only do that if my body lets me. So be aware, you may be donating for a shorter walk. 

I've been ill for over a year now and, while tests and investigations are ongoing, it's likely I have ME/CFS. I woke up one day feeling like I had no energy at all. My mental health hasn't always been great so it was assumed to be a depressive episode. Fast forward one year and I have trouble walking, sitting/standing up, doing too much in a day. Some days I can function, others I will have to spend the whole day in bed. 

ME/CFS can take an average of 7 years to diagnose, has only recently had damaging treatment removed from the guidelines and is usually dismissed by a lot of people. 

Even if it turns out to be something else, the ME/CFS community needs investment and research into why so many people are losing their life to a debilitating illness while their medical tests show that there's nothing wrong. 

You can read more about ME/CFS here: https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

About Invest in ME Research

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS).The charity is run by volunteers - patients or parents of children with ME - with no paid staff. Overheads are kept to a minimum and all funds raised to go to promoting education of, and funding for biomedical research into, ME. Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations, diagnosis and in time treatment(s)/cure(s).

About the charity

IiME

Verified by JustGiving

RCN 1153730
Invest in ME Research has, as its objective, to change how myalgic encephalomyelitis (ME) is perceived, treated and researched. We do this by raising funding for biomedical research and improving education about the disease. We are currently facilittaing high-quality biomedical research in UK/Europe

Donation summary

Total raised
£746.63
+ £161.25 Gift Aid
Online donations
£746.63
Offline donations
£0.00

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