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Tommy Lawson

Listen to my Eyes

Publishing a song for Reverse Rett because I want to speed a cure for Rett Syndrome

251 %
£2,512.52
raised of £1,000 target
by 27 supporters
Donate

Reverse Rett

We fund cutting edge research to reverse Rett Syndrome for good

Charity Registration No. 1136809

Story

Sophie Louise Spence is a little girl with a dazzling smile and the ability to light up a room. At ten years old she should be attending dance classes, reading books and out playing with her friends.

But these simple childhood pleasures are out of reach for Sophie, because the ten-year-old is one who lives every day with the challenge of the rare genetic condition Rett Syndrome.

Initially symptoms can be vague but include speech problems and losing the use of their hands, while some children stop using eye contact and lose interest in toys

The disorder, which strikes as little girls are just beginning to learn how to walk and talk, means that Sophie suffers from severe physical and mental disabilities.

She struggles to communicate and has breathing difficulties and mobility problems – even something as simple as getting to sleep at night proves difficult.

But there is hope. Research into the condition has suggested that damage caused to the brain by the 
condition is not permanent and could be treated in the future. So, the community in Midlothian in Scotland set about raising funds for Reverse Rett, one of the charities funding the research.

A thousand people came together in a community show and we are now releasing a song from that show, dedicated to Sophie and all the Rett angels.  It is performed by local musicians and is called Listen to My Eyes The lyrics say what we think Sophie and all those who have lost the ability to talk and communicate would like to say to her loved ones.

I can see you, I can hear you, I just can’t tell you how much I love you!

If you would like to help us find a cure for Sophie and the thousands that suffer from Rett Syndrome them please buy the single on iTunes, Google Play, Amazon or one of the other online shops. If you have a few dollars or pounds to spare then please consider donating to our just giving page at www.justgiving.com/listentomyeyes or the www.reverserett.org.uk website. Thank you so much for listening and best wishes from Scotland.

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