Walk for Endo 2023

Walk for Endo 2023 · 1 July 2023 to 31 July 2023 ·
I'm walking for endo this July to support the 1 in 10 with the disease, who wait on average a shocking 8 years to receive a diagnosis in the UK! That's too long!
For years i thought nothing was wrong until my symptoms got worse....doctors then told me nothing was wrong (a gp once told me "you probably dont have endometriosis, some women just have painful periods".... I was finally diagnosed with possible adenomyosis and definitely not endometriosis. I cried with relief that I finally had a diagnosis and i wasnt just crazy. The only cure for adenomyosis is hysterectomy... I had surgery only to be told I have severe endometriosis and the surgery couldn't be completed.
I now have to wait for an unkown amount of time further surgery.
Professionals need more training, more awareness and listen to the patient. 8 years for a diagnosis (longer for treatment) is far too long. Its a miserable, depressing and painful long wait.
Please consider supporting my challenge by making a donation. Endometriosis UK relies heavily on donations to support their work which consists of volunteer led support services including a helpline, web chat and face to face support groups, information provision, awareness raising as well as campaigning and lobbying for change and better treatment options.
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