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Adam Street

London to Paris for Team Mikaere

Cycling from London to Paris for Joseph's Goal because we want to help raise funds for NKH research

111 %
£1,113.66
raised of £1,000 target
by 35 supporters
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  • Event: London to Paris for Team Mikaere, 25 May 2018 to 28 May 2018

Joseph's Goal

Joseph Michael Kendrick is 7 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

We’re riding from London to Paris (over 240 miles) to raise funds for research into Nonketotic Hyperglycinemia (NKH). NKH is a rare metabolic disease with no cure and limited treatment options. Only 500 children live with the disease worldwide.

I know Sam and Elly who have a son, Mikaere, who suffers from NKH.

There are so few NKH research projects every pound we raise has a tangible effect on the research that can be done and every pound we raise will have a direct effect on Mikaere's future.

All proceeds will go to Joseph’s Goal as they're UK’s only NKH charity and their donations help fund research by Professor Nick Greene at UCL/Great Ormond St Hospital.

He is developing gene therapy options to provide longer term treatment and so far, his research has had promising results. Nick + Elly have been emailing and in the next stage of research Mikaere's DNA may be used as part of a case study. 

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More information about Mikaere at www.teammikaere.com and on instagram @teammikaere

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