10,000 feet skydive for Huntington's Disease

lori wilson is raising money for Scottish Huntington's Association
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Lori's skydive for HD · 3 June 2017

Scottish Huntington's AssociationVerified by JustGiving
RCN SC010985
Scottish Huntington's Association supports families impacted by Huntington’s disease (HD). 800 people in Scotland have HD with a further 3200 at risk of developing it in the future. HD impacts the ability to walk, talk and swallow, can cause mental illness and affects mood, memory and mobility.

Story

I'm about to throw myself out of a plane at 10,000 feet in the air and hope that the parachute works.


Things I'd rather do:

Wrestle an alligator

Go to prison

Get a bikini wax on TV

Have an awkward run-in with my ex

Get fillings without anesthetic 

Reasons to do it:

I am doing this jump for 2 very special and important men in my life - both of them took Huntington's as it is, and no matter what always remain strong. Both of these men, have inspired me and made me think about life in a new perspective... sometimes - you need to be the best you possibly can be. 

Sadly... I lost one of these men, Huntington's won, again. My heart will forever have a soft spot for him, and i will be doing this jump, especially in his honour to raise awareness of this horrible, horrible disease. Rest in paradise, sweetheart. 💙

To raise money to help support people with Huntington's Disease and offer respite and care for their families.


Huntington disease is a progressive brain disorder that causes uncontrolled movements, emotional problems, and loss of thinking ability (cognition). Adult-onset Huntington disease, the most common form of this disorder, usually appears in a person's thirties or forties. Early signs and symptoms can include irritability, depression, small involuntary movements, poor coordination, and trouble learning new information or making decisions. Many people with Huntington disease develop involuntary jerking or twitching movements known as chorea. As the disease progresses, these movements become more pronounced. Affected individuals may have trouble walking, speaking, and swallowing. People with this disorder also experience changes in personality and a decline in thinking and reasoning abilities. Individuals with the adult-onset form of Huntington disease usually live about 15 to 20 years after signs and symptoms begin.
A less common form of Huntington disease known as the juvenile form begins in childhood or adolescence. It also involves movement problems and mental and emotional changes. Additional signs of the juvenile form include slow movements, clumsiness, frequent falling, rigidity, slurred speech, and drooling. School performance declines as thinking and reasoning abilities become impaired. Seizures occur in 30 percent to 50 percent of children with this condition. JuvenileHuntington disease tends to progress more quickly than the adult-onset form; affected individuals usually live 10 to 15 years after signs and symptoms appear.. As the disease progresses, these movements become more pronounced. Affected individuals may have trouble walking, speaking, and swallowing. People with this disorder also experience changes in personality and a decline in thinking and reasoning abilities. Individuals with the adult-onset form of Huntington disease usually live about 15 to 20 years after signs and symptoms begin.


03.06.17 ✈️

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Total
£700.78
+ £46.25 Gift Aid
Online
£700.78
Offline
£0.00

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