Louie Lenehan

300k to protect little hearts

Fundraising for Societi, The UK Foundation for Kawasaki Disease
£5,378
raised of £5,000 target
Donations cannot currently be made to this page
We Raise Awareness of Kawasaki Disease to help protect tiny hearts!

Story

Many of you know our son Louie was in hospital in February with a disease called Kawasaki. Kawasaki disease is the leading cause of acquired heart disease in UK children. If you have never heard of it before then please keep reading. 

We are so lucky, that one of the four doctors we saw when he started with symptoms recognised the signs of Kawasaki, meaning Louie was treated appropriately on day 5 and his first heart scan came back normal.  The outcome could have been very different if it wasn’t for that one doctor and her knowledge. 

This is living proof that the symptoms of Kawasaki are not well known, from that first night in hospital we were determined to raise awareness of this disease, and started by sharing Louie’s story with friends and family via social media. 

Since then we have found “societi”, an organisation established to do just that. Their ambition is to make sure that EVERY parent, EVERY doctor – and EVERYONE knows Kawasaki Disease. Societi is funded primarily by donations and contributions from fundraiser and this is where were asking for your help. 

 To protect tiny hearts Chris, John and Callum will be running a combined total of 300k in the month of April. Any sponsor, no matter how big or small will be hugely appreciated, and will support societi to continue to raise awareness. 

Please read Louie’s story and educate yourself your friends and other parents about the symptoms. https://www.instagram.com/p/CK4iFZ5BHpw/?igshid=7psjueupcmit

Let’s make a difference ......time to dust of your running shoes boys! 

#kawasakidisease #soceiti #fundraising #charity #run #kawasakidiseaseawareness

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About the charity

Kawasaki disease is the leading cause of acquired heart disease in children in the UK and the western world. It's time we changed that. We have an enormous task to do. But we are going to do it. TOGETHER we will. Join us and help us protect tiny hearts. You can make a difference. Awareness of this often pernicious disease is currently poor. Slow diagnosis and delayed treatment of Kawasaki Disease can cause serious, life-long health issues. Children affected by Kawasaki Disease have excellent chances of a good recovery with timely diagnosis and the correct treatment. At Societi we know that recognising Kawasaki Disease early is THE transformational opportunity to prevent what can be devastating effects from Kawasaki Disease. Kawasaki Disease has lots of symptoms in common with other childhood illnesses so it is often misdiagnosed - this means lifelong heart damage for too many children. Each year in the UK there are more cases of Kawasaki Disease than bacterial meningitis! Everyone would spot meningitis and know what to do, because of brilliant awareness raising work by MRT. We need everyone to recognise Kawasaki Disease too.

Donation summary

Total raised
£5,377.53
Online donations
£5,377.53
Offline donations
£0.00

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