I have recently been diagnosed with ocular sarcoidosis, my symptoms  include blurry vision, painful eyes, fatigue, dizziness, nausea and headaches. I have regular hospital appointments to find a treatment that alleviates the condition whilst minimising the side effects of the medication. I am currently on steroids  immuno suppressants and four different eye drops. 

Sarcoidosis is a condition that can affect any part of the body, lungs, eyes, heart, brain and any other organ. Clumps of cells called ‘granulomas’ stop the affected organ working properly. There is no known cause or cure. It affects everyone differently and the symptoms depend on the organ affected. In most cases, sarcoidosis can be managed by medication and may go away after a few months or years. In the long-term it can lead to serious organ damage.

SarcoidosisUK is a small charity that exists to provide support and information for people with sarcoidosis, and to fund research into a cure for the condition. This charity is currently among the world’s largest sarcoidosis research funders and is passionate about helping to find a cure. SarcoidosisUK is dedicated to funding at least one major piece of research per year and will continue to do this until a cure is found. They rely on support to keep going! They receive no government funding and their work would not be possible without generous donations of time and money

www.sarcoidosisuk.org/

info@sarcoidosisuk.org

SarcoidosisUK Registered charity number 1063986