Louise's Amsterdam Marathon page

Amsterdam Marathon · 20 October 2019
Thrombotic Thrombocytopenia Purpura (TTP) is an extremely rare
disorder of the blood coagulation system, which only affects between 6-10
people in every 1 million.
Because it’s such a rare disorder, there is hardly any funding to help research and combat TTP. With accurate diagnosis and prompt treatment, the current survival rate is approximately only 80%.
TTP is lifelong condition and requires regular treatment.
My grandad was diagnosed with this condition about 12 years
ago. Back then his chances of survival were very small as very little was known about this condition and treatment wasn’t readily available. My grandad has received various types of treatments over the years and was one of the first to trial one treatment in particular which was in fact very successful. There is no cure for TTP but my grandad is doing well and attends regular check-ups to ensure his condition doesn’t deteriorate.
I would like to raise money for the TTP fund to say thank you for everything they
have done for my grandad over the years.
I'm running the Amsterdam Marathon in October to help raise money and also awareness for this rare condition.
I would really appreciate if you could donate, even if it as
little as £1, it will make all the difference.
Search www.ttpnetwork.org.uk for more information.
Thank you,
Louise
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