Your friends are fundraising. Don't miss out, opt in.

307 %
£1,537.60
raised of £500 target
by 48 supporters
Donate
Matthew Burns avatar
Matthew Burns

Luca's Ride for ROHHAD

Fundraising Cycle Ride for ROHHAD Association because It was Luca's wish to raise money for others

307 %
£1,537.60
raised of £500 target
by 48 supporters
Donate

ROHHAD Association

We fundraise for ROHHAD Research & Support to improve survival rates worldwide

Charity Registration No. SCO45645

Story

Luca Pucella was a pupil at Headlands School who suffered from the rare and life limiting illness called ROHHAD syndrome and sadly passed away on Saturday 25th November.

ROHHAD syndrome affects only 75 people in the world and with it comes complex medical requirements.  Despite this Luca had a lot of energy and he wanted to make a difference to the world.

Luca had met another young boy who had recently been diagnosed with the same illness as him and he felt very passionate about raising money.   Luca had been planning a fundraising cycle ride with Matthew Burns the Headmaster before he passed away and so the staff and pupils at Headlands would like to help him fulfil this generous wish. 

‘Luca’s Ride for ROHHAD’ will take place on Thursday 21st December, leaving Headlands School at 1.00pm taking a route along the barrage from Penarth to Cardiff, followed by refreshments and a celebration of Luca’s time at Headlands School at 2.00pm.

Please donate if you can.

Thank you.

Photos

1

Supporters

48