As alot of you are aware , myself and a group of my friends are taking part in a White Collar Boxing Event in aid of NBIA charity . NBIA is a charity which does which does research into PKAN's disorder . This is a very rare , terminal brain disorder which our close friend Jimmy Nemwan daughter Sophie suffers from . It is a terminal degenerative disease which currently has no cure. As it's so rare NBIA currently receives very little funding, nevertheless they are doing all they can do to find a cure for this terrible disease. This means so much to me , Jimmy and all of us so any donation big or small would be much appreciated . Thank you all ! Xx