3 year ago I was diagnosed with Lupus after a scary time of being hospitalised with tests that seemed never ending, it was a horrible time not just for me but every person in my life as we really had no idea what was going on, just that I was reliant on blood transfusions.
6 months after my diagnosis I got the news that I would be starting chemotherapy because the Lupus had affected my kidneys. The chemo completely ruined my life - three weeks after my initial dose I was hospitalised with a stomach bug. after one month in a hospital bed I had contracted Sepsis. 3 days before Christmas I was allowed home given the all clear. Within a week I was back with meningitis to spend another month in a hospital bed. Finally after my discharge I spent 4 months attending the hospital daily, then every other day etc. until they found it suitable that I could return to work - still being checked on weekly.
2 years on I am still managing my Lupus with chemotherapy and a cocktail of other drugs. Things have gotten a lot easier but with Lupus any day can dramatically change.
I'm doing this run as Lupus has held my health back so much that I want to try to take control of my abilities and make it to the finish line.
I am raising money for Lupus UK as there is still no cure, there is no known reason why people develop this disease and even more annoyingly they do not have a management medication specifically for Lupus.
Please feel free to read my blog from when I was struggling with this disease to understand fully what Lupus is and why I am raising money for this charity.