Please God, let London Marathon happen so I can stop banging on about it and asking for money!! 

Again it's all for such a great cause to raise money for research into Nemaline Myopathy, after my nephew's rare diagnosis. 

Charities have been devastated by Covid, so please let's dig deep!!

Nemaline Myopathy is a rare neuromuscular genetic muscle wasting disorder that can affect all the muscles within the body predominantly the heart, lungs and swallowing. Muscle weakness is usually most severe in the face, neck and muscles closest to the centre of the body. There is currently no treatment for NM and careful constant monitoring is essential. The incidence of Nemaline Myopathy is currently 1 in 50,000. 

Please help us fundraise for Louis.