This year, Team Tekkers at Nationwide are taking on Kinder Scout, the tallest mountain in The Peak District, on 13th June in support of The Cystic Fibrosis Trust - we plan to continue fundraising throughout the year and beyond this event. 

This charity was kindly chosen by our Team, as it's something that is probably too close to my heart. In September 1996, I was born and diagnosed with Cystic Fibrosis, making me 1 of 2,500 in the U.K at the time. This wasn't something that was well researched, so from a young age, I lived with the fear of the unknown. I am exceptionally grateful for my fantastic support network and to be honest I wouldn't be where I am today if it wasn't for them.

Over the last couple of years, I have worked with The Cystic Fibrosis Trust, featuring in their Fighting for Breath Campaign, where I was on over 10,000 bus-stops across the U.K. Alongside this, I featured within the UKCFC (U.K. Cystic Fibrosis Conference) booklet.

It's very tricky to describe how my health has been over the years, as this is something that I can't control. If you could sit down and list all the bugs that are common within Cystic Fibrosis, then I've probably had them all. I currently have a 'Superbug' known as Non-tuberculosis myco-bacterium absessus (NTM), this has got to be quite bad, so much so that they call it 'super'. As soon as one bug leaves, I not so politely welcome the next!

I'd love to say that I'm healthy all the time, but I'm not. One day I'm not so bad, the next I'm severely nauseous with a terrible cough. My health fluctuates so much it's like a 'medical mood-swing'. Inconsistency is an understatement. It's very difficult to look after yourself and somedays I really can't be bothered or run out of time, but it's just something I have to do. If I have an exacerbation, then I have an exacerbation.

I'd love to tell you how many tablets I take a day, but I've lost count because it's just normal to me. I've never known any different, it's like brushing your teeth, taking tablets becomes second nature. I take up to 40 tablets a day, 10 of which are antibiotics - although they do make me tan quicker, so it's important to cherish the perks I suppose!

I spend up to 2-3 hours a day on treatment, but somedays it can vary - hello inconsistency again! To 'get it off my chest' I have to complete physiotherapy and inhale 4-6 nebulisers all whilst making sure I remain active and live a normal life, this is all exceptionally time-consuming and draining.

I spent my childhood under Paediatric Care at Northampton General Hospital, until I turned 18 when I transitioned to Adult Care at Papworth Hospital. Both of these hospitals have been absolutely amazing and I couldn't have asked for better care! It's charities like the CF Trust that allow hospitals like these to keep up the brilliant work that they are doing to make my life and others like mine that bit easier. 

There is no cure for Cystic Fibrosis. We will always hope for the day that one is found, but as of yet, we're still waiting. With the recent introduction of Orkambi (lumacaftor and ivacaftor) the medical enhancements just excite me more and more, however this isn't something that is available on the NHS, simply due to its cost. When I was a baby, there wasn't half of the treatments that there are now, can you imagine was can happen in another 21 years?

Thank you for taking the time to read this, if you have any questions please let me know. I've added some links if anyone would like to find out a little more:

Fighting for Breath Campaign:  Check out the video of the poster campaign production! 

https://www.cysticfibrosis.org.uk/get-involved/fundraising/join-our-fundraising-campaigns/fighting-for-breath

Orkambi: Find out more about Orkambi and the amazing potential it has to help people like me!

https://www.cysticfibrosis.org.uk/the-work-we-do/campaigning-hard/stopping-the-clock/orkambi

What is Cystic Fibrosis?

Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.