raised by 12 supporters
Macee AmyandFriends avatar
Macee AmyandFriends

Macee's The Macee Appeal

Fundraising for Amy and Friends

raised by 12 supporters

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746


Macee was born in June 2012 and was diagnosed with Cockayne Syndrome in August 2013.  She has a wonderful smile that lights up the room!


Macee attended a conference organised by Amy and Friends and the support they give to children and families is overwhelming.

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