I have been offered The surgical procedure called Selective Dorsal Rhizotomy (SDR) in USA to help give me some quality of life and to hopefully keep her walking for a while longer. SDR is not available in the UK for my disease, but the world leading specialist Dr Park at St Louis Childrens Hospital has already treated other patients with Hereditary Spastic Paraplegia successfully and so many CP children with some fantastic results, he has suggested this would be a good option for me. 

My family are trying to raise £85,000 to cover the cost of the surgery and long term physio to help me carry on walking. 

I am so thankful for any donation no matter how small as it means a great deal to me. ❤️