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Alice Rath avatar
Alice Rath

Mad Hatter's Tea and Pamper Party

I am hosting a tea party with beauty treatments for Amy and Friends because I want to help fund and support Amy and Friends

100 %
£1,000.00
raised of £1,000 target
by 26 supporters
Donate

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746

Story

Thanks for taking the time to visit my JustGiving page.

I am hosting this event to raise money for the amazing charity that is Amy and Friends - Cockayne Syndrome Support.

Amy and Friends was formed  to support children and families suffering from Cockayne Syndrome.

Cockayne Syndrome is a premature ageing disorder that means the DNA cannot repair itself and therefore leads to a shortened life expectancy (approximately 12 years). There is currently no cure. 

I first found out about the charity when the daughter of friends of mine was diagnosed with the disorder when she was 6 years old. They also suffered the further blow of discovering that their unborn child also tested positive for Cockayne Syndrome. They have a son who is not affected but may be a carrier. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

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Supporters

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