Thanks for taking the time to visit my JustGiving page.
I am hosting this event to raise money for the amazing charity that is Amy and Friends - Cockayne Syndrome Support.
Amy and Friends was formed to support children and families suffering from Cockayne Syndrome.
Cockayne Syndrome is a premature ageing disorder that means the DNA cannot repair itself and therefore leads to a shortened life expectancy (approximately 12 years). There is currently no cure.
I first found out about the charity when the daughter of friends of mine was diagnosed with the disorder when she was 6 years old. They also suffered the further blow of discovering that their unborn child also tested positive for Cockayne Syndrome. They have a son who is not affected but may be a carrier.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.