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Malachi's Only Wish
Fundraising for our sons SDR operation for Tree of Hope because he needs the opportunity to hopefully walk one day
We offer hope to families to transform the lives of sick children
Charity Registration No. 1149254 In Scotland SC042611
Hi my name is Malachi. I am 10 years old and I have Cerebral Palsy. I was delivered by emergency c-section 6 weeks early after suffering fetal distress whilst in my mum's tummy. I weighed 4lb 7oz and they put me in an incubator to stabilise my breathing overnight and then kept me in hospital for over two weeks to put on weight. I was eventually diagnosed at 18 months with Spastic Diplegia because I wasn’t reaching the normal milestones expected.
I am unable to stand alone and cannot walk without the aid of my walking frame or tripod sticks and I need my wheelchair for longer distances. My condition causes the muscles in my legs to be very tight, which is known as spasticity. I need help from my family all the time to move from sitting to standing or transferring to the toilet or shower, which is a real struggle.
I do daily exercises to ease the intense tightness and spasticity in my muscles which become tighter as I grow. I have always wished I could run or even walk unaided around the playground to play football with my friends instead of being the referee in a wheelchair or the boy sitting on the side lines watching with tears in my eyes and an aching heart.
There is, however, the chance of a life changing operation carried out by Dr. Park at St. Louis Hospital in America – an operation called SDR (Selective Dorsal Rhizotomy). To put this simply, this is an operation done by making a small incision at the lower back and testing the nerves individually by using electrical currents, which then shows which nerves are sending ‘faulty’ signals from my brain to my muscles to cause the spasticity. The ‘faulty’ ones are then carefully cut and the spasticity disappears.
If you want to know more about the SDR operation or St. Louis Children’s Hospital then please visit this link:
For me to be able to have this operation the amount we will need to raise will be £80,000 for Tree of Hope to cover the cost of the operation, the ongoing intensive Physiotherapy after the operation and the special gym equipment that I will need to aid my recovery, plus any mobility aids that I may require.
I am grateful for any donation, however small it is, any amount will go towards making my “ONLY WISH” come true.
Thank you so much for your support. I will be forever grateful. Please add gift aid if your a tax payer.