My cousin Liam McCormick and I are running in the Bath Half Marathon on Sunday 4th March on behalf of the CdLS Foundation. This is a charity which we retain a close personal connection to as my sister Danielle has Cornelia De Lange Syndrome (CdLS). This condition affects one in 100,000 live births. It is caused by a random change in one of our several chromosomes and leads to a multiple range of disabilities. These include growth issues, cardiac, neurological, gastric-intestinal problems and behavioural difficulties. Many children born with CdLS have limb defects or missing limbs. To give you a sense of how uncommon it is, CdLS is 100 times rarer than having a child with Down’s Syndrome.
The CdLS Foundation (UK and Ireland) is a small charity that works to raise awareness about CdLS, helps ensure an early and accurate diagnosis of the condition, promote research and provides an invaluable support network for families with an affected person. The CdLS Foundation receives no grants from central government and is entirely dependent on money raised by friends and families affected by CdLS. Any donation is invaluable for helping fund the amazing work they do.
We have set an ambitious target of raising £3,000 but we can only achieve this with your help.
Kieran and Liam x