Hi as many of you know my daughter Katie was diagnosed with ME/CFS( Myalgic Encephalomyelitis/ chronic fatigue syndrome) in December 2012 at the age of 12, she is 17 now and is still living with this dibilitating condition which has robbed her of her teenage years and has changed all our lives. Her symptoms can include chronic fatigue, stomach pain, joint pain, headaches, brain fog, poor temperature control, itchy skin, sore throat, mouth ulcers, light and sound sensitive, fluctuating appetite and sickness, insomnia, depression and anxiety. She was very active and sporty and had danced competitively since she was 5,Katie says not being able to dance is still the hardest part of this illness.She has not been in full time education since year 7 and had many months with no education at all and was very isolated. She managed to get 5 GCSEs mainly self taught and is now doing 2 A levels at college and is hoping to go to university, although she might take a gap year to concentrate on her health if it hasn't improved after college. Her social life has been severley affected and she has lost a lot of friends as she cant lead a normal active life. We like to try and help raise awareness about ME because it is a very missunderstood condtion and not enough research is done to find out more about it and find a cure. Please help us to fund research with Invest in ME. We really need to find a cure. Thanks for taking the time to visit my JustGiving page.
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