Many many miles for Motor Neurones Disease

LJ COLLINS is raising money for Motor Neurone Disease Association
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Many many miles for Motor Neurones Disease · 2 October 2021

The MND Association focuses on improving access to care, research and campaigning for those living with or affected by MND in England, Wales and Northern Ireland. If you or a loved one need practical or emotional support, call our Connect Helpline on 0808 802 6262, Mon to Fri between 9am and 4pm.

Story

Many many miles for Motor Neurones Disease......

Starting on the 2nd of October at 9am, for 24 hours a Yorkshire man and a Welsh man are going to embark on a wonderful journey (if you can call it that?!) running 3 miles/5 kilometers on the hour every hour for a day. The equivalent of completing 24 Park Runs not over 24 weeks, in 24 hours! A measly 120km in total........ Nothing in the grand scheme of things. 

How's it going to work? Whatever time you complete the 5 kms, for example, 30 minutes. That means you've got 30 mins rest until you go again, albeit the fastest 30 mins rest in mankinds history (speaking from experience, those rest periods in daft challenges like this seem to accelerate time ten fold.) during these rest periods it'll be about squeezing in as much food, drinks, wiping the tears away, sorting the blisters and if you're lucky a lil sleep here and there.

So, Who? Last weekend over a delightful cottage pie and watching some maniacs do all sorts of crazy feats on YouTube the plan was created, straight away it felt right. Personally, couldn't be a better match up, me and my good friend George. First time doing anything together this crazy, but, we've done enough together and know it's gonna work, it's not a race, more a plod and most importantly keeping the mind and body in check for whats ahead.....

And, Why? Its been an unusual/tough/different/life changing 18 months for everyone out there, each and every one of us has had different ordeals to deal with, including George & I, both mentally and physically. A friend of mine told me about this story during lockdown and since then it's had me captivated, and everytime I come across it, it gets me going. Not because it's sad and that I feel sorry, more so for the inspiration, family, friendship, teamwork, grit and determination that's been shown throughout. The story of Rob Burrow and how his life was transformed due to Motor Neurones Disease puts everything into perspective, life is for living! If you haven't come across this story yet, go onto the BBC Iplayer and check out his documentary, Rob Burrow: My year with MND. 

Throughout his journey with MND and what we've learnt about him recently, seeing him on the tele and reading about him he's one of the most selfless people on this planet, stemming from his Rugby League days and still now he's fighting it and make sure he's getting the most out of life. All he wants to do, as well as other sufferers such as Doddie Weir, is to make the world more aware of what Motor Neurones Disease is and what we can do about it. Which at this moment in time isn't alot without there being a cure in place. However, with more funding and research we can get in front of this terrible disease and make everyone's life that much better. 

What is Motor Neurones Disease? If you've not come across it, It's a life limiting, rapidly progressing degenerative disease that effects the brain & spinal cord, attacking the nerves that control all bodily movement, eventually your muscles stop working. 

Fortunately Rob and Doddie are in positions where they've got a fantastic support network around them, whereas John the ex postman with MND without any family, who's supporting him?!? And the other 5,000 sufferers in the UK.... That's where we come in.....Let's help them, provide support and get control of this devastating disease!

The pair of us were very fortunate to be brought up in a way thats given us a positive outlook on life and to grasp life by the horns and take it for a good ride. This disease is non discriminative and still they don't know the cause, for lots of people out there struggling, life was normal and within 6 months completely transformed. You never know what's around the corner. It's not only the person with MND that feels the effects it's everyone else around them, life changes instantly. These unsung heroes who look after them also need the support they deserve...... 

Get this story shared and let's do our bit to fight MND.... 

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