Duchenne muscular dystrophy is a rare genetic condition which leads to muscle wasting over time. People living with Duchenne typically need to use a powered wheelchair from their early teens and most will require a ventilator in their twenties.

Life expectancy is around 30 years; there is no cure.

My best friend's son, Jude, has Duchenne Muscular Dystrophy. He is also one of my daughter's best friends. His diagnosis 8 years ago profoundly affected our lives. 

Jude is a remarkable boy who has a great sense of humour. His outlook on life is positive and he handles his condition admirably. He began secondary school last year and started using a powered wheelchair to whizz around. I'm so proud of Jude and his family and the way they handle everything that life throws at them. 

Action Duchenne is a charity that supported his family through his diagnosis and the people who work there are amazing. The support they provide for the Duchenne Community is amazing and I am privileged to volunteer for them. 

Me and my sister Maria, decided to challenge ourselves to walk 20km in less than 4 hours to show our support for Jude and all people living with Duchenne Muscular Dystrophy.  

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Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.