Verity West

Marianne's page to support SMA UK

Fundraising for Spinal Muscular Atrophy (SMA) UK
raised of £1,500 target
by 97 supporters
Donations cannot currently be made to this page
In memory of Marianne West
Spinal Muscular Atrophy (SMA) UK

Verified by JustGiving

RCN 1106815
We offer support to families and individuals affected by SMA


Thanks for taking the time to visit Marianne's JustGiving page and your support.

We are sorry to let you know that Marianne has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a progressive life-limiting condition. Unfortunately she is unlikely to be with us for very much longer. 

Marianne’s condition is very severe and has progressed rapidly. There has been a recent new treatment we could try, but it is not a cure, and would involve a lot of time in hospital, and painful procedures for Marianne. If it did work (and it’s a big if), it would likely only prolong Marianne’s life by a few short weeks, and this would not be the quality of life that we would want for her. Sadly, there is no cure for Marianne’s condition, and so with the help and support of her healthcare team we are focusing on making her last days as comfortable and happy as possible. I’m sure we can count on your support through this difficult time.

About the charity

Spinal Muscular Atrophy (SMA) UK

Verified by JustGiving

RCN 1106815
Spinal Muscular Atrophy UK is the charity for people affected by SMA. We provide emotional support for anyone affected by SMA and fund research related activities.

Donation summary

Total raised
+ £460.75 Gift Aid
Online donations
Offline donations

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