SPG15 is classed as a motor neuron disease but is very rare in fact it appears that there is no one else in the UK, Maddie is the only person. We are fundraising for the SDR operation.
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The Bradley Lowery foundation has been set up to help families who need to fund raise for treatment or equipment, not available on the NHS. We will support families through their fundraising campaign in order to help achieve their targets. We offer not only support, but grants where eligible.