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mark reilly

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running the Great Scottish Run 10k for Reverse Rett because my daughter cant

482 %
£24,101
raised of £5,000 target
by 326 supporters
Donate
  • Event: 3 peaks challenge, 02 Jun 2012 to 03 Jun 2012

Reverse Rett

We fund cutting edge research to reverse Rett Syndrome for good.

Charity Registration No. 1136809

Story

Updated on Sep 13th 2012 at 9:43 PM from the JustGiving API

 

"Hi my name is Dionne Dalziel Reilly. I am 5 years of age and i have Rett Syndrome. I cant walk  and i cant talk. I am unable to dress myself and i cant feed myself. I also have scoliosis of my spine. My mummy and my daddy will have to care for me for my whole life, but i am very happy and i love to laugh and giggle especially at my big brother Dean. My daddy will be running the Great Scottish Run 10K in October because i cant and he wants to help raise money to find a cure to help little girls like me in the future

RETT SYNDROME.......IMAGINE THE SYMPTOMS OF AUTISM, CEREBRAL PALSY, PARKINSONS, EPILEPSY AND ANXIETY DISORDERS..... ALL IN IN ONE LITTLE GIRL !!! CAN YOU IMAGINE THAT?

Rett Syndrome is a severe neurilogical disorder. But there is hope!! In 2007 Rett Syndrome has been reversed in laboratory conditions. Scientists predict that it will be the first curable neuroligical disorder. The problem is that, depite the enormity of this potential there is no government or lottery funding into research. This is because Rett Syndrome is a rare disease which effects only about 1 in 10,000 girls. But this attitude is flawed for two reasons. Firstly on a human level, girls like Dionne should not be ignored because they have had the bad luck to have been born with such a devastating condition. Secondly if a cure for Rett is found, it will go a huge way to funding cures for more common neurological disorders like Cerebral Palsy, Parkinson's and Autism.

A cure for Rett Syndrome is the gateway to finding a cure for these conditions. The difference is, with Rett Syndrome there can be an intense and highly targeted approach. We know which gene is faulty!! We think we know how to restore the gene to health. The only thing holding back a cure is money. Researchers are wholly reliant on private donations from people like you. You are the difference between a life sentence for girls like Dionne and a life of hope and fulfillment. Any donation of any amount would be gratefully recieved for this worthwhile cause. Many Thanks Mark 

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Photos

10
  • Dionne summer 2011
  • Waiting on Dionnes disco bus turning up for her 4th birthday !
  • The guys before Ben Nevis +8

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