Martin Donaghy

Marty's page

Fundraising for Goldenhar UK
£14,045
raised of £9,000 target
by 522 supporters
Donations cannot currently be made to this page
Event: Paris Marathon 2020
Goldenhar UK

Verified by JustGiving

RCN 1099642
We offer a UK wide support network to families affected by Goldenhar Syndrome

Story

Thanks for taking the time to visit my JustGiving page.

****I will now be doing the David Goggins Challenge of 4 miles every 4 hours for 48 hours straight starting Friday 23rd of Oct and finishing on the Sunday ****

Guys, I will be running the Paris marathon on April 5th for a the Goldenhar charity and hopefully my small bit can raise a few pound but also much needed awareness about this condition. Take a minute to read my little bit below and if you can spare a few pound then that would be awesome. Thanks.

Goldenhar UK is a charity run by families and volunteers who are affected by Goldenhar syndrome. Goldenhar syndrome is a rare congenital condition characterized by abnormal development of the eye, ear, skull, spine and in some cases internal organs. Goldenhar UK was set up to help families come together to learn more about this unusual condition and provide support for eachother.

My nephew Aodhán was recently diagnosed with Goldenhar syndrome at 6 months old. Because there isn't much knowledge of the condition, particularly in Northern Ireland, the Goldenhar UK community has been a huge help for his parents. It has helped them to understand his condition and connect with other families going through a similar journey.

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About the charity

Goldenhar UK

Verified by JustGiving

RCN 1099642
Goldenhar UK is a charity setup to support families affected by Goldenhar Syndrome. A condition that causes facial deformities at birth, including (but not limited to) missing ears, hearing loss, skin tags and a cleft palate.

Donation summary

Total raised
£14,044.74
+ £2,255.50 Gift Aid
Online donations
£13,794.74
Offline donations
£250.00

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