Martin Hart

Zero To Hero Nevis Challenge in aid of the ROHHAD Association

Fundraising for ROHHAD Association
£2,175
raised
by 67 supporters
Donations cannot currently be made to this page
Event: Zero To Hero Nevis Challenge
Participants: Jim Carrigan, Paul Crawford, Ryan McConechy
Friends and family members of those battling Rare Terminal Disease ROHHAD Syndrome take on the tallest Mountain in the UK, Ben Nevis for the Zero To Hero Challenge. The teams will ascend and Summit Nevis in August 2021. Please Give What You Can!

Story

Hi there this summer I will be climbing the tallest Peak in the UK Ben Nevis for the Zero to Hero Nevis Challenge. This is to help raise vital funds for ROHHAD Research. ROHHAD is a rare terminal disease that affects less than 150 children and young adults worldwide. Sadly the children often do not reach adulthood and their quality of life is seriously impacted due to the rare disease. They often spend a lot of their lives in hospital undergoing invasive treatments and investigations and rely on medical equipment such as their ventilators to stay alive. The children have hopes and dreams just like you and I and the charity i am walking for has a mission to help the ROHHAD International consortium Find A Cure for them. One of the children will be joining us on the climb, 6 year old Jasmine who is our team leader. She cannot physically summit Nevis itself because of her ROHHAD however she will complete the distance on her treadmill at home. Please give what you can Thank You

About the campaign

Friends and family members of those battling Rare Terminal Disease ROHHAD Syndrome take on the tallest Mountain in the UK, Ben Nevis for the Zero To Hero Challenge. The teams will ascend and Summit Nevis in August 2021. Please Give What You Can!

About the charity

ROHHAD Association

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RCN SC045645
ROHHAD is a rare life threatening and life limiting condition affecting Children worldwide. The Charity mission is to - Fund and promote research leading to a new understanding of and treatments for ROHHAD, one day leading to a cure. We also offer support to those affected and raise vital awareness

Donation summary

Total raised
£2,175.00
Online donations
£2,175.00
Offline donations
£0.00

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