Hi there this summer I will be climbing the tallest Peak in the UK Ben Nevis for the Zero to Hero Nevis Challenge. This is to help raise vital funds for ROHHAD Research.
ROHHAD is a rare terminal disease that affects less than 150 children and young adults worldwide. Sadly the children often do not reach adulthood and their quality of life is seriously impacted due to the rare disease. They often spend a lot of their lives in hospital undergoing invasive treatments and investigations and rely on medical equipment such as their ventilators to stay alive. The children have hopes and dreams just like you and I and the charity i am walking for has a mission to help the ROHHAD International consortium Find A Cure for them.
One of the children will be joining us on the climb, 6 year old Jasmine who is our team leader. She cannot physically summit Nevis itself because of her ROHHAD however she will complete the distance on her treadmill at home. Please give what you can Thank You