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£3,000.00
raised of £2,500 target
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Martin Kemp

Martin's page

Fundraising for Cystinosis Foundation UK

120 %
£3,000.00
raised of £2,500 target
by 102 supporters
Donate
  • Team members: Martin Kemp
  • Event: Martin's Marathon Challenge!, 17 Apr 2011

Cystinosis Foundation UK

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Charity Registration No. 1074885

Story

I DID IT!!! Completed in 04:25:47 very pleased with my time, considering the heat on the day. THANK YOU EVERYONE WHO HAS DONATED AND SPONSORED, it's an amazing total raised and the money will make a huge difference, so thank you soo much!!!! :-) Did I hear you say there's a Brighton Marathon?.......... ;-)

Progress Report 06/03/11 - PB Half Marathon 1hr:46mins.50secs! 1339 out of 6340 Runners, well chuffed :-)

06/02/11 - 18 miles run in 2hr45mins......and ached somewhat!

12/12/10 - 10 miles run reached in training 1hr35mins

30/09/10 - I have a place on the London Marathon!

Deal 10K - Run completed in my PB 1:01:49

Hello Everyone! Please click the read more button below...

Yes, you have seen right, the words Marathon and Martin in the same sentence!

I have decided that I am going to run a marathon for a great charity that I'm pretty sure you probably havent heard of before. Cystinosis Foundation UK  http://www.cystinosis.org.uk/ Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down.This initially leads to kidney problems and progresses to other parts of the body, including the thyroid gland, eyes and liver. Impaired growth is yet another symptom of the condition.

So this charity needs as much awareness as it does money to help provide research for Cystinosis sufferers. I only found out about this charity as friends of ours little boy, Elliot who is 18 months old has recently been diagnosed with the condition. After finding out about it I thought it was important to raise awareness and to help in anyway possible for the charity to raise what is in comparison to other charites a very small target of £300,000.

The charity are currently aiming to produce a drug for the condition that requires administering twice a day as opposed to the current 6 hourly requirement. So you can see they really need as much money as you can give!

I have been very lucky and have a place on the London Marathon! I've only ever done a 10K run before, so this is a big step (well a few more big steps), but its for a great cause so I know it'll all be worth it! Look out for news on some 10k's and a half marathon i'll be running on my steps towards the marathon itself.

So dig deep people and give as much as you can and dont forget to Gift Aid it!

Photos

9
  • I DID IT!!!! Woohoo!!!
  • VLMExpo Picking up my Race No. and Tag
  • Silverstone Half Marathon PB 1:46.50! +7

Supporters

102
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