My nephew suffers from this terrible condition. It does not stop him from having an active sporting life through both cricket and football. My sister and family have worked hard since Jacks diagnosis to raise money for this fantastic charity. So it's now my turn to raise as much as possible for this fantastic charity. 

Thanks for taking the time to visit my JustGiving page and if you can spare a few pounds to help this charity continue its fantastic research please help me reach the target.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.