Most of you know our son, Ben. He has a cross over of Sturge Weber and Klippel Trenaunay Syndromes, both rare, with the combination even more so. 

Through his 26 years, the Sturge Weber Foundation has provided us with all sorts of support: education, research, and most importantly, the ability to connect with families like ours. What a difference they have made in our lives, and most especially, in Ben’s! 

The Million Miles Campaign is a fundraiser benefitting the Sturge-Weber Foundation and research initiatives. The duration of the fundraiser is 3 months (April 1 June 30, 2021). It is an opportunity for EVERYONE to participate in something bigger than themselves that will ultimately lead to the improvement of life for SWS patients and families.

We know times are tough for so many families....any support you could consider providing (emotional; physical - join our team! 😊; or financial) is very much appreciated! Thanks so much for always being there for us!