NEW

You can raise money for a person in need, a club or a community on JustGiving. Find out more

117 %
£1,173.00
raised of £1,000 target
by 55 supporters
Donate
Mary Heald avatar
Mary Heald

Mary's ASSERT page

Fundraising for Angelman Syndrome Support Education & Research Trust

117 %
£1,173.00
raised of £1,000 target
by 55 supporters
Donate
  • Event: Adidas Thunder Run 24hr, 30 Jul 2011

Angelman Syndrome Support Education & Research Trust

We help and support UK families to find the best in Angelman Syndrome.

Story

Edit:

Thanks so much to everyone who sponsored me. I managed to run for the full 24 hours and covered 82 miles in total. It was incredibly hard but the sponsorship money you gave to ASSERT and all your kind words kept me going! I can confirm that no chips were eaten but I was significantly delayed by the heat, leg pain and the consumption of three bags of strawberry laces!

Thank you once again for sponsoring me, the money you have given will make a big difference to ASSERT.

---

Hi and thanks for visiting my fundraising page. As most of you know I am currently in my first year of a PhD at the Cerebra Centre for Neurodevelopmental Disorders. My research focuses on sociability and behaviour in Angelman syndrome. Angelman syndrome is a rare genetic disorder that affects approximately 1 in 20,000 people and is associated with both a physical and cognitive disability. As Angelman syndrome is so rare, this can make it difficult for families and professionals to get information about the syndrome. The Angelman Syndrome Support Education and Research Trust (ASSERT) provide information and support to individuals and families living with Angelman Syndrome. In addition, ASSERT arranges and funds a national conference for families every two years. Please visit http://www.angelmanuk.org/ for more information.
 
In July I will be running in a 24 hour race to raise money for ASSERT. The race is made up of a 10k loop which I try and run as many times as I can in 24 hours without stopping. I hope to run about 100 miles, but this is dependant on how many times I stop to eat chips!
 
I really hope you can sponsor me. Even a small amount will make a difference.
 
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to ASSERT and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
 
Thank you!
 
Mary

 

Photos

1

Supporters

55