Molly Sharp

make our garden accessible and safe for mason who has cerebral palsy.

Fundraising for Sullivan's Heroes
raised of £7,000 target
by 25 supporters
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Sullivan's Heroes

Verified by JustGiving

RCN 1163021
We provide grants, support and fundraising to adapt the homes of UK disabled children


Mason was born at 31 weeks and 1 day via an emergency section, he was weighing a tiny 2lb 4oz. 

Previous to this we had paid for a private 4D scan at 29 weeks to be told he was only measuring at 26 weeks and to contact my midwife which we did, we was sent for a scan at our local hospital (kings mill) where we had our scan and knew in our gut that something was wrong. 

We was told mason had stopped growing due to a kink in the umbilical cord and the best option was for me to try and get to 32 weeks and then have a caesarean.  I lasted 5 days and was rushed for a emergency csection as I had lost all my fluids and we was at risk of loosing him. 

The c section happened and mason was born all 2lb 4oz of him were perfect even though he did look like a little old man! He was taken to the NICU for oxygen and to help put weight on. 

We was over the moon with him and couldn’t wait to take him home.

After a couple of weeks went by he was doing amazing, the weight was pounding on him and he looked more like a little baby. 

3 weeks in and our world came crashing down with a phone call at 2am, sadly mason had fallen seriously ill and was being rushed to Sheffield for live saving surgery, Mason had an infection called NEC () this infection kills the bowel along with the baby. 

He was given a survival rate of less than 25%. His surgery went well but he was still critical and on life support. 

As the week went by he came off his life support and back onto oxygen, he was so fragile and all we could do as parents was just watch and hope for the best. 

A couple weeks passed by and mason was doing well, back on feeds and  his pain was being controlled with meds, even though things were different with him as he now had a stoma and a lot more wires but that was ok, we were blessed to still have him with us. 

A routine brain scan happened and we was pulled into a side room to be given more awful news,Mason had suffered a huge bleed on his brain on both sides, front to back. 

We was told by a consultant to give up on him as we was so young and wouldn’t be able to look after him as the outcome was unknown.

5 years on and we have a beautiful amazing little boy. Mason has a lot of health issues and every year the list gets longer- 

brain damage, 

cerebral palsy 

4 limb spactisty, 


short bowel syndrome, 

visually Impaired, 

scoliosis, gastostrmy fed, respiratory  infections. 

As many of you know we have been fundraising for around 2/3 years now and have recently had a lower extension with a wetroom and bedroom for mason, we cant thank every one enough who has helped us get to were we are now.

As a result of the building work we have had done the bottom of our garden has been wrecked and isn't safe, We are currently fundraising to make our garden a safe space for mason to enjoy, relax and to have easy access for him in all his equipment IE buggy/standing frame. 

About the charity

Sullivan's Heroes

Verified by JustGiving

RCN 1163021
Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds for vital home adaptations for a disabled child, to continue to care for their child at home, safely and with dignity. Please support us, to build brighter futures for disabled children.

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