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matt clements

OI Challenge

I am raising awareness of Osteogenesis Imperfecta for Above & Beyond because Children's Hospital team to helped us so much

194 %
£1,941.81
raised of £1,000 target
by 58 supporters
Donate
  • Team members: Sarah Clements
  • Event: Simplyhealth Great Bristol Half Marathon 2018, 23 Sep 2018

Above & Beyond

We raise funds for Bristol's hospitals to make a real difference to patient care

Charity Registration No. 1170973

Story

Thank you for taking the time to visit our JustGiving page.

Our second child was born in February, after being told that there could be a few complications with her physicality during pregnancy there was nothing apparent at birth. Two weeks a Doctor carried out a routine hip check which resulted in her a fractured femur. 

Specialists and consultants worked hard to understand what happened. She was diagnosed with a rare condition called Osteogenesis Imperfecta (OI) also known as Brittle Bones.

We were lucky to get this diagnosis quickly as many families which we have spoken to have found themselves under investigation for fractures they cannot explain.

As well as raising awareness, we also want to raise funds for the Bristol Royal Children's Hospital Osteogenesis Imperfecta team. We are lucky enough to have one on our doorstep. We can honestly not put into words how much this amazing team has done for us. 

We were lucky to receive weekly hydrotherapy and physio and have specialist equipment and training in order to handle her. After a year we now have a happy, cheeky and determined little girl, the Bristol OI team have played a huge part in this.

We are very lucky to be given this support and want to give something back. We want to raise funds to support more families, to help with much-needed research, emotional support and physical support for children who have OI.

Thank you so much for taking the time to read this.

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Supporters

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