Jon Shaw Foundation was set up in memory of Jon my brother, who died aged 19 from SUDEP (SUDDEN UNEXPECTED DEATH IN EPILEPSY) in June 2019. I miss him a lot and think of him every day. No one deserves to die like he did and noone deserves to lose abrother or sister as I have. Everytime we raise enough money to help someone Jons memory and legacy live on. 

The charity aims to - 1. Support young people with epilepsy by providing grants for equipment such as alarms, monitors and other safety aids not normally available through NHS.

2. Provide services and activities to improve the mental health of bereaved siblings. 

3. Promote awareness of SUDEP, work with and support other organisations specialising in the research of this devastating cause of premature mortality.

Doing it for Jon. Forever 19.