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The British Sjögren's Syndrome Association (BSSA) was founded in 1986, as a registered charity, to raise awareness of the disease and support research into its cause and treatment. A self-help organisation with more than 1800 members, the BSSA is dedicated to providing mutual support and information to individuals affected by this disabling disease.
In Sjögren’s Syndrome the secretory glands that produce saliva, tears, vaginal, and other secretions develop a form of inflammation. As a result of this, these glands stop working leading to dry eyes, dry mouth, dry skin and dryness of the gastrointestinal tract. These features, as well as being very uncomfortable and unpleasant, mean sufferers may have difficulty swallowing dry foods. Dryness of the large bowel can cause symptoms similar to irritable bowel syndrome (IBS).
Sjögren’s Syndrome is the UK’s second most common autoimmune rheumatic disease, a condition where the body’s immune system starts attacking parts of the body instead of fighting infection, yet the condition remains under recognised and frequently under treated. It does not command a high profile within the medical profession, and the general public is largely unaware of the problems faced by sufferers. In reality, Sjögren’s Syndrome can be a debilitating, distressing and miserable condition.
The BSSA receives no government funding, so fundraising and the generosity of others is vital to them. Not only does any money donated ensure they can continue helping those suffering with Sjögren’s Syndrome, but it also helps them continue with their campaign to raise awareness of this debilitating disease and provide the important support needed for research into its cause and treatment.
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