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Tracy Liddle is raising money for Batten Disease Family Association
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Great North Run 2023 · 10 September 2023 ·

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Story

🏃‍♀️🏃‍♂️ Great North Run 2023🏃‍♀️🏃‍♂️ The GNR is the most iconic half marathon in the world and what better way to take part knowing you will be supporting the Batten Disease community by supporting two amazing causes: The Nicole and Jessica Rich foundation and The Batten Disease Family Association who support families across the UK living with all 13 different variants of Batten Disease. We are incredibly proud to support the BDFA in the GNR as we are recipients of the amazing support they give to families who live with this devastating condition. We want to contribute to this wonderful charity to know that we are helping them to continue to provide the much needed services to so many families. The fundraising raised through the GNR event is split as follows 80% will be donated to the BDFA and 20% to our foundation The NJRF BDFA Core services 50% of the funds raised will go towards the BDFA Family Wellbeing Service, which includes Siblings group activities and therapies, also 1:1 therapies and couples therapies for family members  BDFA Special Project 30% we will be announcing this when we have finalised the details with the BDFA NJRF 20% will be used to help with the care of our daughters (services and of equipment) to support their needs, to create precious memories as a family through experiences / holidays. Aswell as this, it will allow us to donate one off sums to support a service or an activity that supports our family within our local community. ‘Want to join Team Rich?’ To secure your guaranteed spot for this years race, all you need to do is: 1. Pay the entry fee of £59 directly to us 2. Commit to hit the minimum fundraising target of £175 3. We can then get you registered (we will talk you through this directly once the first steps are done) We are all here to support each other and if anyone has any questions, concerns or anything they would like to talk about, please don’t hesitate to get in touch. As in previous years, there will be lots of ongoing support including a guide to set up your ‘Just Giving’ pages (which will all link together to in our ‘Team Rich’ page. We will have a team messenger group which is always an excellent way of connecting with other members of our team and sharing hints, tips, advice but mainly to encourage and get excited together as the weeks pass by and the big day finally arrives!!! If anyone knows anyone who got a spot in the ballot but they have yet to choose a cause to support, we would love you to suggest running for batten disease as part of Team Rich and ask them to get in touch with us! Thank you so much in advance and we cannot wait to get things started with GNR 2023!!!! The countdown is on!!

Donation summary

Total
£1,129.00
+ £94.75 Gift Aid
Online
£1,129.00
Offline
£0.00

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