Lisa

Lisa Joan is raising money for Muscular Dystrophy UK
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London Marathon 2022 · 2 October 2022 ·

Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
Our fantastic #TeamOrange runners are taking on the London Marathon 2022 to make every step count in the race to beat muscle-wasting conditions.

Story

In September 2009 my beautiful three year old son was diagnosed with the life limiting, muscle waisting disease  Duchenne Muscular Dystrophy.  His  muscles waste each day and his life expectancy is the early 20’s.  Dylan grows weaker as his peers grow stronger.  At 16 he has lost the ability to walk, life gets more difficult every day. It’s so hard watching him struggle and  face all the challenges life throws at him. No matter how well the day is going there is always a soundtrack of sadness in our life.  Each time I run I wish he could be running next to me and sometimes the guilt I feel for being able to run is overwhelming, often tears are shed  on my running vest.

I was 50 in May and I’ve decided to celebrate by running the London Marathon for MDUK.   Thanks to their genetic research I was able to have a third child, Ewan who is not affected by the disease. MDUK fund various research projects and are incredible advocates for people affected by muscle waisting conditions.   Times are difficult for us all at the moment, but I would be really grateful if you could sponsor me. Those 20 mile training runs will be just that little bit easier with your support.  Thank you!


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Donation summary

Total
£2,000.00
+ £359.25 Gift Aid
Online
£2,000.00
Offline
£0.00

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