Gavin Bell

Amyloidosis Research Fund

Fundraising for Royal Free Charity
£2,403
raised of £1,000 target
In memory of Michael Bell
Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

Story

Amyloidosis is a rare disease caused by damaging build up of abnormal protein fibres, called amyloid, within the tissues and organs. Amyloidosis can affect any part of the body and lead to life threatening organ failure. Until my Dad's diagnosis of type AL Amyloidosis in April 2019 we had never heard of it before but now it's like it's all we can think about. In my Dad's case, by the time he got his diagnosis, the Amyloid had affected his heart, kidneys, nervous system and digestive system. He had to go through a course of chemotherapy, which stopped the production of Amyloid for a short time, but the damage done was too much and on 22nd April 2020 my Dad, the kindest, most caring, healthiest person I have ever known sadly lost his battle with this rare and incurable disease. 

So in his memory, we want to raise as much awareness about this disease as possible and, with the help of your donations, want to contribute to finding better prolonging treatments and ultimately a cure for this disease. It causes the death of about one person in every thousand and there are about 6,000 cases in the UK at any time and our hope is that by raising funds we can help make sure those diagnosed, their families and the amazing medical staff have a better chance of fighting it.

The Amyloidosis Research Fund within the Royal Free Charity supports the research, development and patients of the UK NHS National Amyloidosis Centre (NAC) at the Royal Free Hospital. The Centre, established in 1999, is funded directly by NHS Specialised Services to provide diagnostic and management advisory services for all UK amyloidosis patients.


Share this story

Help Gavin Bell

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the campaign

Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.

About the charity

Royal Free Charity

Verified by JustGiving

RCN 1165672
The Royal Free Charity supports staff and patients across the Royal Free London NHS Foundation Trust. From small acts of kindness to huge investments in research, everything we do changes lives for the better. We support our hospitals to go further, faster – delivering impact locally and globally.

Donation summary

Total raised
£2,402.50
+ £471.88 Gift Aid
Online donations
£2,402.50
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.