Thanks for taking the time to visit my JustGiving page.
The Fibrous Dysplasia Support Society was formed in 2007 by a group of patients and carers, who are affected by fibrous dysplasia, McCune Albright Syndrome or Cherubism. It exists to provide information on this rare condition that can impact the skeleton and endocrine system.
I was appointed Chairman of this charity in 2016 and look forward to raising funds and working with a fantastic board of trustees (picture attached). We are going from strength to strength as a charity so to continue with that momentum I've decided to run the Edinburgh Marathon this year.
Any donation would be greatly appreciated.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.