In April 2021 our daughter Hallie was diagnosed with a rare chromosome syndrome called 18p deletion, a syndrome affecting 1 in 50,000 babies. To find out was heartbreaking especially as Trace was already pregnant with our second baby (Rowan).

In the initial conversation with the specialist we were told that she may never walk, may never talk and a list of other potential issues. We were shattered. Fast forward a year and a bit and Hallie is coming on leaps and bounds. She started to walk just before Rowan was born and is starting to say more and more by the day. She has been seen by all sorts of doctors and specialists - taking it all in her stride. The appointments will continue as she grows up, but she is a happy and healthy toddler who loves her baby brother, chocolate, reading books, dancing and driving the car 😜.

Hallie amazes us every day and we will be with her every step of her journey - even the days when she’s being a typical toddler and telling RoRo ‘No’! ❤️

I’m raising money for unique to help fund more research into rare chromosome syndromes and so that they can continue to provide support to families like us.

Thanks for taking the time to visit my JustGiving page.

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