Michelle's Climbing Snowdon

Michelle Allen is raising money for Reverse Rett
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Climbing Snowdon · 26 June 2016

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

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Little bit about why I'm asking for for your cash!!

Neil Fowler is a physio I know from working at the Countess of Chester Hospital. His daughter, Ciara, has Rett Syndrome. I have watched in awe at the amazing endurance events that Neil and his support team have put themselves through, in order to raise money and awareness for Rett Syndrome, in the hope of one day getting closer to finding a cure (see below, copied from Reverse Rett website for better insight).

Neil has formed a team 'Ciara's Centurians' the aim being to enlist 100 people to take part in a sporting event or just organise something with the aim to raise at least £100 each. I'm proud to be one of Ciara's Centurians and will be climbing Snowdon on 26.6.16. I thank you for any help in raising funds for this important cause. 

Rett syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday and leaves them with multiple disabilities and medical complexities for life.
Most people with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.
Research has shown that girls with Rett do not have brain damage. They know and understand much more than their bodies allow them to show - but they are locked in, trapped by a body that cannot obey signals from their brain.
Whilst there is currently no treatment for Rett Syndrome, there is hope.
In 1999 scientists identified the genetic mutation that causes Rett Syndrome. In 2007, they unexpectedly reversed the condition in mouse models of even late stage disease.
Our research efforts are now focused on translating these research developments into treatments and cures for our children living with Rett Syndrome today.


Donation summary

Total
£180.00
+ £32.50 Gift Aid
Online
£180.00
Offline
£0.00

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