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Mick Holton

Mick's The Grunt for R.E.D. October

Running Every Day in October... for Joseph's Goal because ...we can't wait 'til January to fund NKH research

54 %
£2,743.00
raised of £5,000 target
by 92 supporters
Donate

Joseph's Goal

Joseph Michael Kendrick is 7 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

Thanks for taking the time to visit my JustGiving page.

This is the story of Mikaere, a beautiful little boy, who will celebrate his second birthday during October.  Mikaere has Nonketotic Hyperglycinemia - NKH.

NKH is a rare, terminal metabolic disorder.

Essentially Mikaere can't process glycine, a neurotransmitter.  This causes seizures and severe development and learning delays.  Treatment options are limited.

Every day is precious

Mikaere inherited NKH from his Mum and Dad, Elly and Sam - they had no idea they are carriers.

As well as being fantastic parents, they are doing everything they can to fund a gene therapy cure for NKH.  They have partnered with Joseph's Goal to raise funds for NKH Research done by Dr Nick Greene as part of UCL.  He's currently the world leader in NKH research. 

Elly and Sam are determined to give the research team the best shot at finding a cure for NKH.

I work with Makaere's Grandad, Andy, and he is championing the cause.  The company we work for, Infinis, has Joseph's Goal as our Charity of the Year.  Joseph's Goal is a small charity, every penny raised matters and we thank each of you in advance for your support.  We'd like Mikaere to celebrate many birthdays - I was going to do this in January, but it can't wait!

Please leave your messages for Mikaere, his family and for all those who live in hope for a cure for NKH.  This is all about them, their dedication and their bravery.

To find out more:

Www.teammikaere.com

Instagram @teammikaere

Facebook.com/teammikaere

Www.foundationnkh.org

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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