Story
Become part of Mimi's Pit Crew and help us move #CDKL5forward on the road to a cure this June 2022 CDKL5 Awareness Month! Last year, we raised over $5,000 towards a cure. This year, I'm doubling my goal to $10,000 and I'm going to need EVERYONE'S help.
Over the month of June, I'm going to walk and hike 200 miles to move CDKL5 research forward. I'll be documenting my activities on Instagram and tagging them #CDKL5forward and #MimisPitCrew to raise awareness. You can "donate" your workouts to CDKL5 awareness, too, by using the same hashtags. If you mention me in your posts, I'll share them on my account, too. Even better, if you're local to LA, let's build our buns of steel together. If we work really hard all month, we *might* get to be half as buff as Mimi (if you know her, you know she's muscly).
I'll also raise awareness by getting real in my stories about life with CDKL5 for Mimi and for our family. Behind all the happy pictures above are struggles that impact every aspect of daily life.
Please support my efforts by giving financially whatever you can through this page. How much? A cure won't come cheap, but whatever you can give will help. Mimi and everyone waiting for a cure needs you!
Thank you from the bottom of my heart!