Story
Thankyou most sincerely for taking the time to visit this page and reading my reasons for hosting this charity lunch in aid of the Jack and Jill Children's Foundation.
Sadly last February, Joe's niece Kathy, and her husband Owen's beautiful second daughter Erin was diagnosed with an extremely rare genetic condition called Pontocerebellar Hypoplasia Type 6. Unfortunately, this condition is currently untreatable and sadly life limiting. This diagnosis means that Erin will require 24 hour care and support her whole life. Their lives revolve around Erin's needs; medication, feeding, sleep, seizures and multiple therapies. Life has dealt Erin a tough hand but her parents love her to the moon and back and are doing everything in their power to give her the best life possible.
I also love Erin with all my heart but unfortunately I cannot offer Kathy and Owen any practical support in Erin's day to day care. However, by hosting a charity lunch in aid of the Jack and Jill Children's Foundation on Saturday August 20th at our home in Iceford Ballina we will hopefully raise much needed funds that allows the Jack and Jill Children's Foundation to provide practical support to Kathy and Owen. This wonderful organisation provides specially trained nurses who are coming to Kathy and Owen's home on a regular basis taking care of Erin. Knowing that Erin is cared for by such highly qualified nurses means that both Owen and Kathy have the peace of mind that allows them an occasional night's sleep, or equally important, to devote time to their other beautiful daughter Cara.
So as a friend, I hope you come to our home at Iceford, Quay Road, Ballina and enjoy lunch on Saturday 20th August and donate as generously as you can to the Jack and Jill Children's Foundation which is providing practical and unconditional support to Baby Erin and her family, and many other families who have children with very special needs.
Sincerely and in gratitude for your support,
Miriam Grady Morrin