Hi there. Thanks so much for visiting my page, every penny I raise for this event goes straight to the Cystic Fibrosis Trust, so all contributions greatly received.

 

Basically, I'm spending the Saturday after my 30th birthday cycling 100km through the streets of London at night. Surely that's worth a few quid for a really important cause.

 

The Cystic Fibrosis Trust is the UKs only national charity dealing with all aspects of Cystic Fibrosis. It funds research to treat the symptoms of CF and to find an effective treatment. It also aims to ensure appropriate healthcare for those with Cystic Fibrosis and provides information, advice and support to people with CF and their families across the UK. Cystic Fibrosis is one of the most common, life-threatening diseases in the UK. It affects over 8,000 people and 1 in 25 of us carries the faulty gene that causes Cystic Fibrosis. If two carriers start a family, each child has a 1 in 4 chance of having Cystic Fibrosis. Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick, sticky mucus making it hard to breathe and to digest food. People with Cystic Fibrosis have to endure a rigorous daily treatment regime including physiotherapy to clear the chest, inhaled and injected drugs to thin the mucus and fight infections and dozens of enzyme pills to help digest food. Each week, five babies are born with CF and sadly, each week three young lives are lost. Around half of those with CF can expect to live over 35 years, but a baby born today can expect to live longer. Each year we invest around £4 million in gene therapy research and around £800,000 in symptom control, infection, transplant and other research. We also spend around £1 million improving the care of those with CF and around £1 million on information, advice and support. None of this would be possible without the support of the CF community and the generosity of the public.

 

Donating is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer.